MCC Compass
Guiding Our Community. Sharing Stories. Connecting the World of MOGAD.
Introduction
The MCC Compass™ is the official newsletter of the MOGAD Connection Center (MCC), created to inform, inspire, and connect the global MOGAD community.
Just as a compass helps guide us on life's journeys, the MCC Compass serves as a trusted source of information, hope, and connection for patients, caregivers, families, healthcare professionals, and advocates affected by MOGAD.
Each issue is designed to bring our community together by sharing stories, celebrating achievements, highlighting important developments, and reminding every family that they are not alone.
Our Mission
To educate, inform, and inspire the MOGAD community by sharing meaningful stories, valuable resources, and updates that empower patients and families around the world.
What You'll Find Inside
Every issue of the MCC Compass may include:
• Patient and family stories
• Children's and youth features
• Community spotlights and volunteer recognition
• Updates from the MOGAD research and advocacy community
• Information about MCC programs and initiatives
• Event announcements and upcoming opportunities
• Articles from healthcare professionals and advisors
• Resources for newly diagnosed families
• Inspirational stories of resilience and hope
• Special features celebrating the achievements of our community members
A Newsletter Built by the Community
The MCC Compass is more than a newsletter—it's a reflection of the incredible people who make up our community.
We believe that every story matters, every voice deserves to be heard, and every family's experience has the power to inspire someone else.
That's why we invite patients, caregivers, children, advocates, volunteers, and healthcare professionals to share their stories, artwork, accomplishments, and experiences.
Keeping Our Community Connected
Living with a rare disease can sometimes feel isolating, especially when families are separated by distance and geography.
The MCC Compass helps bridge those distances by bringing our community together through shared experiences, education, and hope.
No matter where you live in the world, the MCC Compass is your place to stay connected with everything happening across the MCC community.
Our Promise
At MCC, we believe that information empowers, stories inspire, and connection creates hope.
The MCC Compass will always strive to be a source of encouragement, education, and community for everyone affected by MOGAD.
Because wherever your journey takes you, we're helping point the way forward.
Welcome to the MCC Compass™.
MOGAD Connection Center (MCC)
No Family Should Navigate MOGAD Alone!
